Current:Home > ContactWhat is Angelman syndrome? Genetic disorder inspires Colin Farrell to start foundation -Edge Finance Strategies
What is Angelman syndrome? Genetic disorder inspires Colin Farrell to start foundation
View
Date:2025-04-20 08:41:35
Colin Farrell says his personal life has inspired him to launch a new foundation aimed at helping people with intellectual disabilities.
The actor, 48, recently launched the Colin Farrell Foundation, which "committed to transforming the lives of individuals and families living with intellectual disability through education, awareness, advocacy, and innovative programs," according to its website.
Farrell has personal experience with family members who have an intellectual disability. His 20-year-old son, James, whom he shares with his ex-partner Kim Bordenave, was diagnosed with Angelman syndrome as a child.
In a recent interview with People, Farrell, who had not publicly spoken much about the diagnosis before, said James will turn 21 in September and will age out of the support systems that are provided to families with children who have special needs.
Farrell said his foundation will provide support for those adult children with intellectual disabilities through "advocacy, education and innovative programs," People reported. He will serve as president of the organization.
Here's what to know about Angelman syndrome.
'He's magic':Colin Farrell opens up on son's Angelman syndrome
What is Angelman syndrome?
Angelman syndrome is a rare neuro-genetic disorder caused by a loss of function of the UBE3A gene that happens during fetal development, and causes developmental delays, intellectual disability, movement issues and speech impairments, according to the Cleveland Clinic. There is no cure for the disorder.
It is named after Dr. Harry Angelman, and English physician who first described the condition in 1965.
The disorder is rare, affecting around one in 12,000 to 20,000 people, the Cleveland Clinic says.
Is Angelman syndrome passed down from parents?
The majority of Angelman syndrome cases are the result of a spontaneous gene mutation, which means it is not passed down from the biological parents to a child.
Angelman syndrome equally affects males and females.
What are the symptoms of Angelman syndrome?
People with Angelman syndrome will show developmental delays that are noticeable between 6-12 months, and seizures often begin around 2-3 years of age.
Features that can point to the disorder include developmental delays, speech impediments, intellectual delays, problems with movement and balance and recurrent seizures, according to the National Institute of Neurological Disorders and Stroke.
Gastrointestinal, orthopedic and eye problems are also common, as well as hyperactivity and a short attention span.
In addition to the neurological symptoms, people with Angelman Syndrome may have distinct facial characteristics, the Cleveland Clinic says, including a small head, wide mouth, large tongue, widely-spaced teeth and a large lower jaw.
Children with Angelman syndrome typically have a "happy, excitable attitude," according to the Cleveland Clinic, and can frequently, laugh, smile and make hand-flapping motions.
How is Angelman syndrome treated?
As there is no cure for the genetic disorder. Treatment for Angelman syndrome often focuses on managing medical problems and developmental delays, according to Boston Children's Hospital.
Treatment can include medication for seizures, physical therapy, speech therapy, occupational therapy and behavioral therapy.
veryGood! (29283)
Related
- Jamie Foxx reps say actor was hit in face by a glass at birthday dinner, needed stitches
- New Mexico gets OK to seek $675M in federal grant to expand high-speed internet across the state
- Delaware gubernatorial candidate calls for investigation into primary rival’s campaign finances
- How Stephen Nedoroscik delivered on pommel horse to seal US gymnastics' Olympic bronze
- Intellectuals vs. The Internet
- Saoirse Ronan secretly married her 'Mary Queen of Scots' co-star Jack Lowden in Scotland
- Paris Olympics set record for number of openly LGBTQ+ athletes, but some say progress isn’t finished
- Olympics 2024: Brazilian Gymnast Flavia Saraiva Competes With Black Eye After Scary Fall
- EU countries double down on a halt to Syrian asylum claims but will not yet send people back
- New Details on Sinéad O'Connor's Official Cause of Death Revealed
Ranking
- Sam Taylor
- When's the next Federal Reserve meeting? Here's when to expect updates on current rate.
- Shannon Sharpe, Chad Johnson: We'll pay US track stars $25K for winning Olympics gold
- Did the Olympics mock the Last Supper? Explaining Dionysus and why Christians are angry
- Which apps offer encrypted messaging? How to switch and what to know after feds’ warning
- Former Raiders coach Jon Gruden asking full Nevada Supreme Court to reconsider NFL emails lawsuit
- ‘Vance Profits, We Pay The Price’: Sunrise Movement Protests J.D. Vance Over Billionaire Influence and Calls on Kamala Harris to Take Climate Action
- Sheriff in charge of deputy who killed Sonya Massey declines to resign, asks for forgiveness
Recommendation
Selena Gomez's "Weird Uncles" Steve Martin and Martin Short React to Her Engagement
Second spectator injured in Trump campaign rally shooting released from hospital
Radical British preacher Anjem Choudary sentenced to life in prison for directing a terrorist group
Team USA to face plenty of physicality as it seeks eighth consecutive gold
'We're reborn!' Gazans express joy at returning home to north
US Soccer Stars Tobin Heath and Christen Press Confirm They've Been Dating for 8 Years
Robinson campaign calls North Carolina agency report on wife’s nonprofit politically motivated
Cardinals land Erick Fedde, Tommy Pham in 3-way trade with Dodgers, White Sox